Guía para padres: qué hacer después de que su hijo recibe un diagnóstico de discapacidad del desarrollo HP3

Thursday, May 8, 1:00 pm–2:30 pm

(Session will be in Spanish, for parents of children with a disability)
Descubrir que su hijo tiene una discapacidad puede ser abrumador y emocionalmente desafiante. Experimentará una variedad de emociones positivas y negativas. Puede llevar tiempo superarlas. No hay una forma correcta o incorrecta de sentirse y cada persona reacciona de manera diferente. Es un momento importante que marca el comienzo de un nuevo capítulo en la vida de su familia.
Esta presentación lo guiará a través de los pasos iniciales posteriores al diagnóstico, ofreciéndole consejos prácticos, diferentes perspectivas y un sentido de comunidad.
(Finding out that your child has a disability can be overwhelming and emotionally challenging. You will experience a range of positive and negative emotions. It may take time to work through them. There is no right or wrong way to feel and each person reacts differently. It is an important time that marks the beginning of a new chapter in your family's life.
This presentation will guide you through the initial steps following diagnosis, offering practical advice, different perspectives and a sense of community).

Presented by

Sandra Urite
Multicultural Family Support Program Manager
The Arc of King County

Originally from Buenos Aires, Argentina, Sandra was an elementary school teacher for 10 years before immigrating with her husband to the US in 2001. Her journey into the developmental disabilities community began with the birth of her daughter, who was diagnosed with Cri du Chat. Sandra completed the Ambassador Program at The Arc of King County and join the staff in 2016. Currently she is the Multicultural Family Support Program Manager at The Arc of King County, and oversees the implementation of all family support activities (including Parent to Parent) in English, Spanish, and tailored for Black/African American families.

Handouts

Age Group Addressed:
All age groups

Audience:
Parents, Foster Parents, Relative Care Givers, Social Worker, Healthcare Staff, Home Visitors, Family Resources Coordinators, Interested Professionals

Core Competency Area:
Families and Community Partnerships

Skill Level:
Fundamental

Presentation Outcomes:
1. Empowerment and Information:clear, actionable information will help parents and caregivers understand the next steps in securing appropriate services, therapies, and support systems. Knowledge empowers families to make informed decisions about their child's care, which can lead to improved outcomes. 2. Building Support Systems:Families can learn how to access community resources, legal aid, and advocacy groups that offer support specific to their child's diagnosis and unique needs. This fosters resilience in the family unit. 3. Cultural Sensitivity:the presentation will be inclusive of diverse cultural perspectives to ensure that families from various backgrounds feel seen and heard. 4. Promoting Inclusion: Offering information on inclusive educational settings, social opportunities, and ways to foster independence in children with disabilities to ensure families understand how to integrate their child into mainstream society. This can create better social outcomes, reduce stigma, and enhance the child’s quality of life. 5. Psychosocial Support:the presentation will include coping strategies, access to counseling, and emotional support to help families navigate the complex feelings that arise when receiving a disability diagnosis. This psychological support can reduce stress, improve family dynamics, and strengthen resilience. 6. Long-Term Planning:the presentation will assist families in thinking beyond immediate steps to plan for long-term care, financial planning, and adulthood for their child. This guidance can help families prepare for their child's future needs and set realistic goals, ensuring sustained, positive outcomes as the child grows.

Learning Objectives:

Identify and manage a range of emotions that may arise after receiving a developmental disability diagnosis, including grief, anger, frustration, and hope.
Develop strategies to cope with the challenges of raising a child with a developmental disability, including stress management techniques and self-care practices.
Learn how to navigate available support systems at the local, state, and federal levels, including early intervention programs, educational services, and healthcare options.
Cultivate a positive perspective on your child's abilities and potential, focusing on their strengths and celebrating milestones.

Guía para padres: qué hacer después de que su hijo recibe un diagnóstico de discapacidad del desarrollo HP3

Presented by

Handouts

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