What Happened to my Child? Raising Awareness of PANDAS/PANS FA4

Friday, May 9, 10:30 am–12:00 pm

Children should not be healthy one day and in need of psychiatric care the next. 1 in 200 children are affected by these post-infectious disorders known as PANDAS/PANS. An abrupt onset of obsessive compulsive disorder and/or eating restrictions and/or tics could indicate that neuroinflammation is to blame. It is vital that anyone working with children and youth learn about these disorders so we can avoid these kids being misdiagnosed and overlooked. Early diagnosis and medical treatment is necessary and leads to better outcomes.

Presented by

Sarah Lemley
Executive Director
Northwest PANDAS/PANS Network (NWPPN)

Sarah holds a master’s degree in Public Administration; Health Administration and is the co-founder and executive director of the Northwest PANDAS/PANS Network. In her role as ED for NWPPN, she has hosted the first Northwest PANDAS/PANS Provider roundtable, coordinated five Grand Rounds, introduced and passed legislation in Oregon, Washington, and Idaho, coordinated 4 Awareness Day Walks and supported over 1,000 families in the Northwest. Prior to her work establishing NWPPN, she worked extensively in the healthcare industry. Her work experience includes healthcare administration, health insurance administration and renewal, social work and advocacy.

Kym McCornack
Head of Family Support
NWPPN

Handouts

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PANDAS/PANS Family Brochure

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PANDAS/PANS Family Brochure-Spanish

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Medical Flyer PANDAS/PANS

Age Group Addressed:
All age groups

Audience:
All, Parents, Foster Parents, Relative Care Givers, Teachers, Administrators, Home Visitors, Family Resources Coordinators, Interested Professionals, Students, Trainers, Adult Educators, Therapists, Social Worker, Mental Health Professional, Healthcare Staff

Core Competency Area:
Health, Safety, and Nutrition

Skill Level:
Fundamental

Presentation Outcomes:
Raising awareness will lead to productive outcomes for young children and their families across the spectrum of diversity because any child that falls under any of these spectrums can be affected by these disorders and ensuring knowledge and access to medical care is vital to ensure better outcomes for these children and families.

Learning Objectives:

Become familiar with the post-infectious disorders known as PANDAS/PANS.
Recognize key symptoms of these disorders.
Understand barriers to care.
Know where to refer those suspecting this disorder so that they can find medically competent care and support.

Expertise
none required

What Happened to my Child? Raising Awareness of PANDAS/PANS FA4

Presented by

Handouts

IECC Registration Office

IECC Registration